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Our current funding and engagement opportunities are listed at the bottom of this page.

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Submit to Lived Experience Advisory Group (LEAG) Interest Form

Our partners at the University of Minnesota are seeking area agency on aging staff members and family caregivers of people living with dementia to participate in two distinct research advisory groups for an upcoming research study. The advisory groups or Lived Experience Advisory Groups (LEAGs) are part of a broader study that is comparing two web-based dementia care programs designed to support family caregivers of individuals living with dementia.

Area Agency on Aging Lived Experience Advisory Group (AAA LEAG)

The AAA LEAG is an opportunity for staff members with first-hand experience providing programming and support to caregivers of people living with dementia to share their insights with researchers on web-based dementia care programs. Members of this advisory group will offer input on topics such as:

  • best practices and challenges experienced with implementing and sustaining web-based dementia care programs
  • strategies for communicating and disseminating information about innovative dementia care programs to family caregivers 

 

Caregiver Lived Experience Advisory Group (Caregiver LEAG) 

The Caregiver LEAG is an opportunity to ensure that the voice and perspective of people living with dementia and their family caregivers are heard, considered, and reflected in the research process. Members of this advisory group will offer input to the research team on topics such as:

  • dementia care, services, and supports
  • development and design of caregiver-facing research materials 
  • strategies for making dementia programs accessible and engaging for their communities 

 

LEAG Participation, Expectations, and Incentives

Both advisory groups will be meet on quarterly basis via Zoom for approximately an hour and a half. The first meetings are anticipated to begin in late October or early November 2026. Participation for both the AAA LEAG and Caregiver LEAG will include training on relevant research topics, occasionally reviewing study related materials, and providing feedback between meetings. Members will be asked to make an initial commitment of one-year on the LEAG with the option to extend for an additional year.

In exchange for participation AAA LEAG members' organizations will receive up to $2,000 per year for staff participation; Caregiver LEAG members will receive up to $2,000 per year for their individual participation. 

 

For questions or additional information about the LEAG research advisory group, please contact Laura Jane Ward-Strunin (lward-strunin@usaging.org). 

 

Submit to National Caregiver Champion Collaborative

USAging invites Aging Network providers and partners who are responsible for the administration of caregiver services and supports to register to join the national Caregiver Champion Collaborative (CCC).

With a purpose of facilitating and supporting peer networking and engagement for those leading caregiving services and supports, participants will gather regularly in an affinity group model to share successful strategies and best practices, discuss lessons learned, explore new partnerships and get insight into the latest research and emerging evidence-based programs. This effort is administered by USAging through the Innovations in Family Caregiver Services and Supports cooperative agreement from the Administration of Community Living (ACL).

Who can participate in the CCC? 

Participants are likely to be leaders and managers from Aging Network providers and partner organizations, such as State Units on Aging, AAAs/Title VI Programs, aging service providers, caregiving service providers and others. Participants will have interest and experience in caregiver supports and services and may be responsible for programs funded through the National Family Caregiver Support Program (NFCSP, OAA Title III E), the Native American Caregiver Support Program (NACSP, OAA Title VI C), the Lifespan Respite Program, the Alzheimer’s Disease Prevention Programs Initiative or others. Others who work at the intersection of caregiving services and supports are also welcome to attend (e.g., a transportation or nutrition provider whose work impacts caregivers and with an interest in growing knowledge and networking). 

What are the inclusion criteria? 

The CCC will be a monitored and staff supported open format group with the inclusion criteria being that the group is comprised of staff responsible for the administration of caregiving services and support.  

What is the meeting frequency? 

The Caregiver Champion Collaborative will meet bi-monthly on Zoom. The CCC will be an ongoing collaborative and is expected to start around May 2024.  



Questions?

For technical questions about Submittable, please check out the Submitter Resource Center and contact  Submittable's Customer Support team for all your Submittable technical assistance needs.  

For questions specific to USAging’s National Caregiver Champion Collaborative, please email: caregiving@usaging.org


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